ARCHIMEDES

ARCHIMEDES, (Advanced Research Collaboration for Health Integration, Medical Exploration, and Data Synthesis), is a health data platform funded through the Brain-Heart Interconnectome (BHI). Its aim is to deliver a user-friendly informatics platform with centralized access to curated and federated brain-heart health data and to provide an open-access repository and leading-edge analytic tools and resources.

Platform functionalities:

  • Facilitate collaboration and include data capture and management systems for multi-modal data
  • Built to allow secure audits and access for approved secondary data use
  • Data deposit and management using a multi-modal databasing ecosystem
  • Repository and comprehensive project management functions, with more than 50 modules to support multi-site studies
  • Advanced data analytics and high-performance computing
  • Data querying tool allows users to identify and access data cohorts for analysis

To learn more, contact @email or visit the platform website.

Data sharing informed consent templates

The Metaresearch and Open Science Program at the Ottawa Heart Research Institute has developed three versions for data sharing informed consent, including Open Access, Controlled Access, and Retrospective Controlled/Open Access. Adapted from the Ottawa Health Science Network Research Ethics Board (OHSN-REB) templates, these new templates include comprehensive consent for data sharing and storing for future research, and have been reviewed and revised through many processes including from legal and bioethical perspectives by lawyers from different jurisdictions in Canada, privacy and security professionals, patients and caregivers.

Please view the data sharing consent templates for use in four different scenarios for clinical study data to be shared:

  1. Prospective consent – open data sharing
  2. Retrospective consent – open data sharing
  3. Prospective consent – controlled data sharing
  4. Retrospective – controlled data sharing

The data sharing consent templates are available publicly on the Metaresearch and Open Science Resource Hub website.

Meet the ARCHIMEDES team